Monday, September 24, 2012

google your name.  you will be surprised how many weblinks have access to your information.     click on privacy and you will normally get a opt out option.

Monday, August 6, 2012

I have finished my drug therapy.  I have no virus in the viral load test.  I will have a six month follow up, then 5 years.

I have my energy back however last week both legs got infected from me not being able to leave the psoriasis alone.  I am now on antibotics and recovering.

I want to thank everyone for prayers. 

Sunday, June 10, 2012

Well I'm starting my 6th month of treatment.
Last month lab shows my white cell count up from 2.2  to 3.6 which I was estatic.
Psorasis now covers both legs and is starting to move to knees and upper arms, also more areas have started in my scalp.
My hair is thinning terribly so I need to start looking for a short hair style.

Next month we will determine if no viral load is found to stop drug therapy.

Sunday, May 6, 2012

my third month of treatment was horrible.  extreme fatigue. I did get the small garden planted with help.  I've harvested a couple of zuc;s.  praise god the fourth month labs show no viral load, I am off the horrible colon infested meds and am healing there.  I still am battling fatigue, but the Dr. and staff are pleased in the progress.  Due to low white blood cell count I tried Kale, that stuff is nasty.  also I am dealing with more hair loss now.

Oh and friday before last I had to visit the local fire and rescue for my injection I still cant give them to myself.  ty hotties. 

Thursday, February 16, 2012

to garden or not

emotion:  anxious

goal:        to cook meat spaghetti

thanks to C. she bagged chili for me its ready to freeze.

No new symptoms to mention.  the hemmoriods are tolerable due to meds the dr. provided

Wednesday, February 15, 2012

huh

emotion:  restful

goal:  freeze chili I've made

yesterday exhaustion finally hit.

today is a new day!

Tuesday, February 14, 2012

2 wk follow up labs

emotion:  semi-happy

goal:  find one

lab results:  expected while on meds

clotting = good
hemoglobin= good
white cell= little low
platlets= low

symptoms of meds, severe anal discomfort.   taste, nausea, and fatigue.

oh happy valentines day

Who's a good little trooper!

You are going to go the distance!

http://www.youtube.com/watch?v=qKax7euEM5Q

The video is def cheesy but the song is pretty inspiring right?

Sunday, February 12, 2012

going going gone not really

Going on 3rd week, this weekend was a rough weekend all together


still in upbeat mood.

Thursday, February 9, 2012

ty

emotion:   Thankful

goal:  sitz bath

thank goodness for ora gel       my hiny hurts one of the horrible side effects.

Wednesday, February 8, 2012

wacky wednesday

emotion:   Thankful

goal:         buy spaghetti sauce.

No new symptoms, Drs Friday for 2 week followup

Tuesday, February 7, 2012

so

emotion:  semi-  :)

goal:  handle the busy busy day I've got without freaking out.  LOL   jk

the symptoms are not as bad as I thought from research.

Monday, February 6, 2012

2nd week

emotion:  _________

goal:  ____________

second week and I'm feeling __________, _________.

guess you can tell this is fill in the blank day.

Friday, February 3, 2012

side effects

emotion:   optimistic

goal:  come back to this

feeling ok


Thursday, February 2, 2012

almost a week completed woo hoo 51 more to go

emotion:   hopeful

goal:  find a project to knit

So slept well last night after moving one med up 2.5 hrs.
Noticed a slight pressure on my right side approx where my ovary would be, will ask Dr. if not cleared when I go for my two week check up.  The last 2 days I've battled with nausea leading to being sick.

But all in all, still in good spirits, though the fight is just beginning.  

Insomnia sucks, right?

So here is a song to celebrate. Your awake but alive. Hope you have a great day!

http://youtu.be/2aJUnltwsqs

Wednesday, February 1, 2012

5th Day Still waiting

emotion: undecided, just a hmmmm day.

goal:  finish work project started yesterday evening.

must wait to blog seeing what the day brings.

Tuesday, January 31, 2012

It's a good day

Emotion:  Semi-happy

goal:  pretend to finish taxes.

So far very little joint pain, insomnia and today I've noticed more headaches and cankle rashes, that itch like arrrrgh!    The one thing I forgot was hydrocodone.  I went to my podunk grocery store to find Benadryl and no luck.

Still upbeat, so in the future remind me.

Monday, January 30, 2012

Who's a trooper?!

Mom got her first shot on Friday and was such a toughie!

http://www.youtube.com/embed/ZvEnIkz82A0
Love,


C

not so bad

emotion:   rested

goal:  no nap today

I noticed my hair looks darker.  Maybe not

Sunday, January 29, 2012

Weekend

emotion: Listless

goal:  laundry

insomnia

Saturday, January 28, 2012

Not a bad night hope for a good day

emotion this morning k
goal:  remember med schedule and take a nap, eat my red and white cell foods




The only symptoms I had tonight was insomnia

Friday, January 27, 2012

ho hum

emotion:  anxious
goal:  buy panties   J/K

worried about treatment but better than tuesday


This afternoon went through injection training.  The first shot ok.  Now for the pills.  I feel right now as if I have a lump in my throat and it won't go down.  Not nausated at the moment but in another hr the next pill dose.
My oldest daughter went with me and will administer the injections here out.updated 6:52


chills, fever, aching joints, insomnia, diarrhea.  All in all not a bad night.


first night chills, fever, aching joints, insomnia, diarrhea.  All in all not a bad night.

The Power of Prayer

Remember, you are being lifted up in prayer all over the place!

http://youtu.be/STKkWj2WpWM

Thursday, January 26, 2012

time will tell

Emotion:                  empty
Goal:                        finish project at work so I can close the ticket.

Friday after instructions start therapy.

Wednesday, January 25, 2012

What is tubthumping anyway?

Pull yourself of by your bootstraps and keep going! Stay away from the thumping of tubs though. What ever it is it can't be good! Don't piss your day away ; }

http://youtu.be/2H5uWRjFsGc

k

so after the melt down last night and this morning I hope I'm ready to face the days to come.  I will post my emotions:  
goal:

Tuesday, January 24, 2012

Crash and Burn

Last night I get a call all meds will be filled tomorrow (which is today).  I get a call this am asking if I'm ok from my angel girl,    not a worry slept like a baby.   And then the meds are in my possession and I start feeling the anxiety.  So by tonight I'm in tears explaining facts to a co-worker that is in the same position  work related.  Friday I will start receiving injections, and meds that will kill (what I think is all cells) however its not.  Explosive diarhhea,   now thats a laugh truely funny if it weren't one of the symptoms.

Monday, January 16, 2012

Saturday, January 14, 2012

Busy Work

So to keep my mind off things, which maybe considered avoiding the obvious.  No, it just keeps me busy.
Finished my last project waiting to give it away.  Now to find my next project and do another load of laundry.

Wednesday, January 11, 2012

Reality sets in

Still haven't received meds yet.  But going over the side affects again.  I'm gonna need a strong support group.

Monday, January 9, 2012

Mundane Monday

It wasn't really, but.

I wanted to continue my pity party however, X called and I rolled on outta bed.

Good day in all.  Wondering if I'm still optimistic.

Sunday, January 8, 2012

New Day

So after ripping out my knitting, I broke down.  Called a friend and he came to support me.  I think the hardest is I'm scared.  But on a bright note I'm over my knitting goal..    Yeah!!

Saturday, January 7, 2012

Saturday

Well today I found myself wanting to sleep in.  A call from my X and I was outta bed.
I hear the birds outside and today I feel optimistic. My goal will be to decide which item I want to knit next and try and knit 12 rows.


Me myself and I accomplished 12+ rows and had to rip it out so I stand at 0 but tomorrow is another day

Friday, January 6, 2012

Cherish

I found that the plan is as severe as I thought.  Awaiting treatment
My goal for today is to finish a scarf I'm working on.

Thursday, January 5, 2012

Hope

This will be a way for me to journal my treatment. Hopefully I will look back on post and/or comments and remember the tasks before me were very simple ones.
Dr. tomorrow to develop treatment plan.